BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//ChamberMaster//Event Calendar 2.0//EN
METHOD:PUBLISH
X-PUBLISHED-TTL:P3D
REFRESH-INTERVAL:P3D
CALSCALE:GREGORIAN
BEGIN:VEVENT
DTSTART:20260920T140000Z
DTEND:20260920T170000Z
X-MICROSOFT-CDO-ALLDAYEVENT:FALSE
SUMMARY:Ella's Entourage Walk
DESCRIPTION:Walk. Support. Donate.\nFor Ella\, for every family affected by HNRNPH2\, and for a future where no child faces this journey alone.\n\nWALK\n\nSunday\, September 20 - Walk for Hope. Walk for a Cure. \n\nStay afterward for music\, coffee\, bagels\, and donuts as we celebrate this incredible community.\n\nAdditional details will come in ticket confirmation emails from Givebutter.\n\nDONATE\n\nEvery contribution brings us one step closer to a cure.\n\nWalk tickets and donations 100% of proceeds support the Yellow Brick Road Project\, the nonprofit leading research\, advocacy\, and treatment for HNRNPH2.\n\nELLA'S STORY\n\nElla is one of just 221 known people worldwide living with HNRNPH2-related neurodevelopmental disorder (HNRNPH2-RNDD) a devastating rare genetic condition that affects her ability to walk\, speak\, and learn. Every milestone is hard-earned\, and every step forward is a victory.\n\nToday\, there is real reason for hope. Thanks to the relentless efforts of families and researchers\, the first-ever clinical trial for HNRNPH2 is underway a historic milestone for our community.\n\nBut this isn't the finish line. The treatment requires a spinal tap every 12 weeks for life\, and it isn't a cure. We still need better treatments. We still need answers. We still need a cure.\n\nThat's why we walk.\n\nWhether you're family\, a friend\, or simply someone who believes every child deserves hope\, you belong here. \n\nLearn more at YBRP.org
X-ALT-DESC;FMTTYPE=text/html:Walk. Support. Donate.\nFor Ella\, for every family affected by HNRNPH2\, and for a future where no child faces this journey alone.
\n\nWALK
\nSunday\, September 20 - Walk for Hope. Walk for a Cure. 💛\;
\nStay afterward for music\, coffee\, bagels\, and donuts as we celebrate this incredible community.
\nAdditional details will come in ticket confirmation emails from Givebutter.
\n\nDONATE
\nEvery contribution brings us one step closer to a cure.
\n\nWalk tickets and donations 100% of proceeds support the Yellow Brick Road Project\, the nonprofit leading research\, advocacy\, and treatment for HNRNPH2.
\n\nELLA&rsquo\;S STORY
\n\nElla is one of just 221 known people worldwide living with HNRNPH2-related neurodevelopmental disorder (HNRNPH2-RNDD)&mdash\;a devastating rare genetic condition that affects her ability to walk\, speak\, and learn. Every milestone is hard-earned\, and every step forward is a victory.
\n\nToday\, there is real reason for hope. Thanks to the relentless efforts of families and researchers\, the first-ever clinical trial for HNRNPH2 is underway&mdash\;a historic milestone for our community.
\n\nBut this isn'\;t the finish line. The treatment requires a spinal tap every 12 weeks for life\, and it isn'\;t a cure. We still need better treatments. We still need answers. We still need a cure.
\n\nThat'\;s why we walk.
\n\nWhether you'\;re family\, a friend\, or simply someone who believes every child deserves hope\, you belong here. \;
\n\nLearn more at YBRP.org
\n
LOCATION:Walk will take place around Techny Basin in Glenview\, IL
UID:e.434.11896
SEQUENCE:3
DTSTAMP:20260804T121838Z
URL:http://business.glenviewchamber.com/events/details/ella-s-entourage-walk-11896
END:VEVENT
END:VCALENDAR